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Leukemia Foundation of Australia
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The Leukaemia Foundation is a not-for-profit organisation that aims to provide information and support to patients and their families living with leukaemia, lymphoma, myeloma and related blood diseases. This website has information on statistics and their publications on the different diseases and treatments in a number of languages. It also has information on the support services the organisation provides in Victoria, including practical assistance with accommodation and transport.
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Leukaemia Foundation’s online support and information forum
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A moderated virtual support group for patients, families, and carers living with leukaemia, lymphomas, myeloma and other related blood disorders—allows participation in discussion forums with others going through similar situations related to blood cancers and their treatment.
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Lymphoma Research Foundation (U.S) (LRF)
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The LRF is a voluntary health organisation dedicated to funding lymphoma research and providing patients, their families and health professionals with information on the disease. Their website is very comprehensive and provides detailed information on the lymphomas.
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Cutaneous Lymphoma Foundation (UK)
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The Cutaneous Lymphoma Foundation is an independent, non-profit organization supporting people with cutaneous lymphoma through awareness, education, the advancement of patient care and research. Site includes information about cutaneous lymphoma, publications, information on clinical trials, treatment, and research as well as a section for physicians. Under the heading “About CLF there is a glossary of terms.
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Leukaemia Research Fund (U.K)
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The Leukaemia Research Fund is a charity dedicated to research and the treatment and support of patients’ and families living with leukaemia, lymphomas, myeloma, anaplastic anaemia, myelodysplasia, myeloproliferative disorders and related blood disorders in both adults and children. Their publications on the different diseases and treatments are on this website which also has information on clinical trials and links to other relevant websites.
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International Waldenstrom’s Macroglobulinemia Foundation
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The purpose of the Foundation is to provide information, resources and a communication network for patients with Waldenstrom’s, their families and health professionals. Their website provides access to excellent resources specific to the disease.
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Bone Marrow Foundation (U.S)
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The Bone Marrow Foundation is based in the U.S, and provides information and support to patients and families throughout the transplant process. The website has allogeneic and autologous transplant information and publications on registration with the organisation.
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Bone Marrow Transplant Network (U.S)
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This website is sponsored by seven international blood and marrow transplant organizations. It provides health professionals and patients with a direct link to each of their websites and access to a comprehensive array of resources on transplantation issues.
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American Association of Blood Banks
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This site contains information on blood components and specific information about receiving blood transfusions.
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